Making a difference for others

Today hubby and I spent the afternoon working with the NHS maternity bereavement team and a few other bereaved parents to rewrite the survey that goes out to parents who have lost about their care and gave our input to a new toolkit for parents as well as better training for medical staff. This will be put out nationally this summer.
I am so grateful for the amazing care and information we received when our world fell apart in September but in other hospitals this is not always the norm and some things we would want to be done better. We told them of what mattered the most.
We feel privaledged and honoured to have been asked and to hopefully make a difference for future bereaved parents.

For us the medical staff held us emotionally when our babies hearts had stopped and guided us through what we can only describe as a nightmare over the next few days and beyond to go through labour to meet them but then have to say goodbye. Yet amidst all this we remember the wonderful support of the midwives who sensitively looked after our needs as a family and respected our girls to the highest level they deserve and acknowledged who they were by calling them by name.

Being a part of this meeting today and what is to come is just one way we hope to continue to honour our beautiful daughters Chloe and Grace here on earth though they are not here with us ๐Ÿ’—๐Ÿ’—

Love, laughter and life

Had a creative evening last night using ‘paint’ programme on my computer to duplicate and edit a butterfly I painted with watercolour. I then put in some flowers and words and here is the result. I love butterflies.
‘Love others and yourself, laugh as often as you can and live life to the full’.

Spring butterfly: a glimpse of hope and changeย 

Saw this lovely butterfly today out sunning itself so I took a photo. It did not move from that spot whilst I admired its delicate wings and furry body so I was a bit worried it would be ok. Later on though on my way back from my walk to the park I checked and it had flown off.

Not sure if it had just come out of its chrysalis or if just having a rest but for me on a day of sun after what had seemed a long winter not only in a real season turning into spring but a dark long winter in my heart, the sight of this beautiful butterfly gave me a glimmer of hope and change.

Sunshine memories

Such a beautiful day today but that came with very tough moments of seeing pregnant mummies and mums out with their children enjoying the sun. Reminds me of the summer months last year feeling the sun beam down on my growing kicking bump and dreaming of my future when I would take my girls out to the park to play. They would have so giggled and danced in the sunshine.

Will never get over this but will grow through it. ๐Ÿ’–๐Ÿ’–

A lift encounterย 

This evening I got into a lift with my hubby after a much deserved date night and we were very quickly followed in by a mum and her identical twin girls. They were maybe 4 or 5 years old with deep brown eyes, dark long hair and olive skin. As the door closed I was trapped and felt a sense of panic as for a few moments I couldn’t avoid facing my strong mixed emotions.

As they gazed up at me and gave me the cutest smiles I was mesmerized. My heart just felt full and part of me just wanted to stare at their beauty. As I looked into their eyes I could imagine that this lady was me. Me with my daughters Chloe and Grace. Had we just been shopping together ? Or for a meal?

The other part of me just hurt to the core and my heart again felt broken.This was not me but should have been.

On the whole, seeing babies and children don’t get to me as much anymore but identical twin girls in a lift with no way to avoid them was a real test for my heart. No matter what happens and in how many years I will always have Chloe and Grace in my thoughts, I will know the age they should be at any given time and though I never got to look into my babies’ eyes as they were born sleeping, whenever I see twins or little girls with deep brown eyes, I will dream of what could have been.

New year no fear

This was meant to be our year to welcome our two beautiful girls into our lives and 2017 was going to be different.

I could be wishing this year to end real quick based on some terrible events that happened but no I am not going to dwell on the bad. I am going to remember and celebrate the amazing things that happened which include the times we shared with family and friends, my turning 40, our 10th year of marriage, and most of all the memories of seeing our girls cuddle on scans, their first kicks and the absolute miracle and priviledge of being a mum even for just 6 months.

These are the gifts and memories I will start my new year with. I don’t know what this year will bring but I go into it not with fear but with my heart full of love and hope.

Hearts entwined

After weeks of deciding what jewellery would be best to get in memory of my beautiful daughters Chloe and Grace I went with this interlocked heart ring in rose gold. This is something I can always wear (a necklace would have been lovely too but I tend to wear chunky necklaces).

It has their names inscribed inside and even the position of the hearts matches where they were in my womb before they were born. I liked pink stones to symbolise them being girls but also wanted sapphire (usually blue) to mark September and managed to get pink sapphires!! ๐Ÿ™‚ I love it!! ๐Ÿ’–๐Ÿ’–

A lovely surprise

Last Friday I went to a pamper evening. I ordered 2 wooden engraved hearts with my girls’ names on for the Christmas tree from a lovely woman there and ended up telling her about my story. Anyway they arrived today. Absolutely cried my eyes out when I opened the package to not only see the 2 hearts but a third …Look at the note and what she wrote and what the third one says ….How lovely of her!! ๐Ÿ’•

The day we met you

Mummy and Daddy went back into hospital Monday 26th September. Nanny and Grandpa took us and stayed with us. They were our rocks!

I hadn’t Sept all night as I knew what was to come but it was all very scary as I had no idea what labour would be like. I had no preparation for this as I was due a caesarian section at 32 weeks. How painful would it be? how long would it take? what if I should die? At the same time I was grieving for you in my heart too. I didn’t know how I would feel when we would meet you. You weren’t going to be alive. You wouldn’t cry or open your eyes or move. You had already gone but we would still have the priveledge of seeing what Mummy and Daddy had created together after so many years of dreaming what you could look like..

We found ourselves back in the same room where the consultant confirmed your hearts had stopped. This time my bed was laid and I noticed the seethrough perspex crib at the end of the room. there was also a bed for Daddy at the side for when he got tired later on.

I spoke to Aunty M on the phone. She would come to see you when you were born.

The consultant did a final scan to see where you were positioned. You were head down. Grace you were still on my right higher up and Chloe, you were on my left lower down so you would be born first.

We met the lovely midwives who explained what would happen next. I would be given a pessary to dilate my cervix and induce contractions every 3 hours with a maximum of 5. after then i would need special IV drugs. They struggled to find veins to take blood and for setting up an IV line.

I was given my first pessary at 10.30am. Soon I felt my uterus tightening. I went for a walk with Nanny in the u-shaped corridors to try to bring on my contractions. I felt numb when I saw Dads holding their new babies and heard a few mums screaming in labour.

3 hours passed and I had my second. The insertion of the pessary hurt like a knife blade. I used gas and air whilst Nanny and Daddy held my arms and reassured me. I then had what felt like heavy period cramps. I could cope with just paracetamol and rocked through the contractions. Daddy couldn’t stand to watch me in pain and was angry and sad at what had happened and what was to come. Grandpa prayed.

Soon after that pessary I had a high temperature so was put on a drip with 2 lots of antibiotics. It was likely a reaction to the pessaries but they had to be sure I didn’t have an infection. By the third I couldn’t control the shivering which took over my whole body. I frequently needed to use the toilet and Nanny helped me each time. She and Daddy took it in turns to put cold flannels on my head to try to bring my temperature down. I felt very uncomfortable with a tight tummy. Grandpa went to get a wheat bag and some overnight things and food for the morning as he and Nanny were allowed to stay in the next en-suite luxury room.

I was hot then cold and overly emotional and extremely exhausted. i took pain killers through the drip. At each pessary and through each contraction which soon came every 30 seconds I chanted ‘ I am doing this to honour my babies, I am doing this to honour my babies’ and my eyes followed the patterns on the ceiling to focus myself away from the pain. The physical pain took over the emotional pain. I chose to be brave. This was the final thing I could do as your mother before you were born.

As I was so tired the midwives said I could take a break to sleep and start again in the morning! No! I had to carry on!

At the 5th pessary (15 hours) the contractions were so strong and though I tried so hard to be brave Nanny and Daddy sat on my bed with me and pleaded with me to have an epidural. I reluctantly gave in.

I am pleased I did though. The anesthetist was able to put in the epidural between contractions as I sat on the edge of the bed with my head looking down at the floor. After some time my pain eased as I pressed the button each time. I got a bit of rest but no sleep as my mind was active and confused.

Then my waters broke! you were soon to be here. I had dilated well. Grandpa arrived back.

For some reason I could still feel pain deep inside my uterus and back on my right hand side. They laid me on that side to see if the anasthetic would move to where I needed it and it did.

Whilst on my side I then felt a contraction and a pressure in my bottom and suddenly you were here Chloe!

Chloe Beatrice Emiola born at 1.51 am Tues 27th Sept (600g/1.3lb)

I couldn’t see you as you were out of view but Daddy did! I will never forget the shocked look on his face as he exclaimed ‘Oh my God’ as he saw you for the first time. He carefully cut your cord. The lovely midwife who delivered you both (she was caring and reminded me of Aunty M, my sister) handed you to me in a little white sheet and said ‘this is Chloe’. Oh ‘she is so beautiful, she’s got Daddy’s nose and bear feet’ I uttered with a smile. I held you close. I felt your soft warm feet so sweet and so tiny, your warm head and hands. Your skin was a deep pinky tone and your features were just like Daddy’s. You had our small ears. Your tongue slightly stuck out which I thought was adorable.

Then Daddy proudly held you, you looked so small in his arms. Then Nanny and Grandpa held you – their first Grand child!

Grace Suzanne Olufemi born at 3.23am Tues 27th Sept(500g/1.1lb).

Over an hour later of being on IV drugs to bring on more contractions I, now laying on my back, pushed and pushed and then Grace your head came out. Daddy was there watching as you were delivered, much slower than how Chloe came out. On the next push you came out. The cord was around your neck so the midwife removed that and then Daddy cut your cord. Nanny brought you to me. You were so beautiful just like your sister and I couldn’t wait to hold you too. I held you on your own at first and then held you both together. I felt your soft sweet tiny feet, your warm pale skin (like mummy). You had more curled up toes just like mummy’s but your nose more like Daddy’s.

Daddy had a special time with you and Nanny and Grandpa did too. Grandpa took photos of you both whilst you were still warm and just born.

Some time later I then delivered the placenta. A biopsy of this was sent for testing.

You were our beautiful little baby girls, lifeless but perfectly formed.  The cords were so tangled and knotted ; the cause of why you both died. There was nothing we could have done differently as it happened so fast.

We all wept over you, though somehow I was full of joy.  I felt guilty at this as I should be feeling upset but why should I not rejoice too at seeing my new babies?

We were all exhausted, me especially after 17 hours of labour. Daddy went to sleep on the bed in the room and Grandpa and Nanny went to their special room. The midwife put you side by side together in the cot. I lay awake for hours in shock at the trauma that had taken place. I cried and spoke aloud in anger and then told you how much I loved you and prayed you would come back to life. I finally drifted to sleep though my temperature was still high and my mind was racing. You remained next to my bed until I woke to face the next day.

Somehow I had energy though I only slept a few hours to get up and have breakfast. I was a bit stiff from the epidural. My temperature was back to normal so I could go home when ready though needed to take antibiotics for the next week.

The midwives took prints of your tiny feet. Chloe it looks like you moved as there is a smudge but we know you didn’t.

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We left you in your cot where you looked at peace together and wheeled you through to the en-suite room where we stayed for some hours before we had to say goodbye.

This next day you didn’t look the same, you were cold, your souls had gone ๐Ÿ˜ฆ

The Chaplain from the area came to pray with us which was lovely. An amazing volunteer photographer from Remembering my baby came to take photos of your last moments with Mummy and Daddy whilst Nanny and Grandpa went for a walk for some air. We chose some beautiful knitted dresses and hats and satin embroidered gowns that had been donated to the hospital that the midwife carefully dressed you in and we held you for the last time. We were a family!

Then once back in your cot, Nanny and Grandpa came back from their walk and we introduced you to Aunty M, Grandma and our own vicar (who comforted us all with encouraging words and prayers). They loved you and cried over you.

Most of this time I felt in a daze. It felt like a weird nightmare and not reality for me. My memories of the past few days didn’t connect up in a linear order but in fragments and I couldn’t make sense of my emotions which changed frequently from guilt to anger, to a sense of loss to utter devastation.

Mummy and Daddy held each other close. We spoke over you and told you we loved you. We said Goodbye xxxx

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